"We hope that the state will take swift action to help save our children's lives," the parents said in a statement
Author
Front News Georgia
Parents of children living with Duchenne Muscular Dystrophy are due to meet Prime Minister Irakli Kobakhidze today to discuss access to treatment for the rare genetic condition.
Ahead of the talks, parents said their main demand remains unchanged- the introduction of modern medicines used to treat Duchenne muscular dystrophy, which they say can slow the progression of the disease and extend patients' life expectancy.
"We hope that the state will take swift action to help save our children's lives," the parents said in a statement.
Families of children with Duchenne muscular dystrophy have repeatedly called on the government to fund access to newer therapies, arguing that early treatment is critical to improving outcomes for patients.
The meeting comes amid ongoing efforts by parents and advocacy groups to secure broader access to specialised medicines for children affected by the condition.
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